Newborn Screening in America: New report from CRG

by jeeg 21. September 2012 00:23

Before they are even a week old, ninety-eight percent of the 4.3 million babies born annually in the United States have a small sample of blood taken from their heels. These newborn bloodspots (NBS) are then screened by state agencies for a variety of inherited conditions and may later be stored in state-operated databases with access permitted to researchers.  While the benefits of newborn testing are undeniable, there are also troubling consent and privacy issues raised by the screening, storage, and use of the samples; particularly as screening has moved beyond well-understood, treatable conditions.  

 

September is Newborn Screening Awareness Month.  Newborn screening is one of the few forms of genetic testing to which almost everyone is exposed. Yet parental knowledge of newborn screening is almost non-existent. Indeed many parents are unaware that their children have even undergone such testing, let alone that their child’s DNA has been collected and stored by the state.

 

Newborn Screening in America: Problems and Policies, a new report from the Council for Responsible Genetics, is a comprehensive look at the practice of newborn screening in America today, from its history to its benefits-- both real and exaggerated--to the serious lack of consent from and education for parents.  

 

With state-by-state coverage of practices and procedures, this new report reveals the need for public discussion and debate about the practices surrounding newborn screening, storage, and use.

 

The report can be accessed at the following url:

http://www.councilforresponsiblegenetics.org/pageDocuments/WNMAKEPP1P.pdf

Comments

2/28/2013 7:07:14 PM #

pingback

Pingback from oldthinkernews.com

Explosive report: 98% of newborn babies are genetically screened | Old-Thinker News

oldthinkernews.com |

3/1/2013 4:45:06 AM #

pingback

Pingback from setyoufreenews.com

Explosive report: 98% of newborn babies are genetically screened «  Set You Free News

setyoufreenews.com |

3/1/2013 4:35:01 PM #

pingback

Pingback from thedailysheeple.com

Explosive report: 98% of newborn babies are genetically screened

thedailysheeple.com |

3/17/2013 3:29:39 AM #

pingback

Pingback from camopreppers.com

Creating a Surveillance and DNA Database for Every American . . . From the Cradle to the Grave |

camopreppers.com |

3/17/2013 12:01:07 PM #

pingback

Pingback from intellihub.com

Creating a Surveillance and DNA Database for Every American . . . From the Cradle to the Grave | Intellihub.com

intellihub.com |

3/17/2013 4:38:51 PM #

pingback

Pingback from fromthetrenchesworldreport.com

Creating a Surveillance and DNA Database for Every American . . . From the Cradle to the Grave |

fromthetrenchesworldreport.com |

3/18/2013 6:51:45 AM #

pingback

Pingback from jewishterrorism.com

SLAVE STATE: The DNA DATABASE FOR EVERY AMERICAN . . . From the Cradle to the Grave

jewishterrorism.com |

3/18/2013 9:14:13 PM #

pingback

Pingback from sagaciousnewsnetwork.com

Creating a Surveillance and DNA Database for Every American . . . From the Cradle to the Grave | Sagacious News Network

sagaciousnewsnetwork.com |

3/18/2013 9:51:12 PM #

pingback

Pingback from awakeawareandpartofthesolution.com

Creating a Surveillance and DNA Database for Every American ... From the Cradle to the Grave

awakeawareandpartofthesolution.com |

3/19/2013 1:07:59 AM #

pingback

Pingback from buzzparanormal.com

Surveillance and DNA Database for Every American Is Being Created

buzzparanormal.com |

3/19/2013 12:58:40 PM #

pingback

Pingback from sovereignindependentuk.co.uk

Creating a Surveillance and DNA Database for Every American . . . From the Cradle to the Grave | Sovereign Independent UK

sovereignindependentuk.co.uk |

3/19/2013 11:34:39 PM #

pingback

Pingback from anonoperations.com

SURVEILLANCE AND DNA DATABASE FOR EVERY AMERICAN IS BEING CREATED | Anonymous Operations

anonoperations.com |

3/20/2013 10:13:45 AM #

pingback

Pingback from theglobalelite.org

Creating a Surveillance and DNA Database for Every American | Global Elite

theglobalelite.org |

12/10/2013 4:21:32 PM #

pingback

Pingback from pentapostagma.gr

Έκθεση Σοκ: το 98% των νεογέννητων μωρών στην Αμερική ελέγχεται γενετικά |

pentapostagma.gr |

4/4/2014 1:24:30 AM #

pingback

Pingback from thefallingdarkness.com

Explosive Report: 98% of Newborn Babies Are Genetically Screened | The Falling Darkness

thefallingdarkness.com |

Comments are closed
Log in