24. March 2011 23:02
Most of us have heard of biobanks but few of us really know what they are. The new issue of GeneWatch magazine, now available online, digs deep into this important issue with exclusive interviews and a variety of penetrating essays by experts in the field on the practical and ethical concerns, research and logistical challenges, and the utility of different types of biobanks; including renowned bioethicist Hank Greely’s call to arms “to challenge, in legal and political forums, the ways biobanks are created and run.”
The issue also features an interview with Christy White, one of the people behind a study finding that even after the passage of the Genetic Information Nondiscrimination Act, Americans are more concerned than ever about their genetic privacy; an article by Steven May, Executive Director of the Forum on Genetic Equity, on the proposed Massachusetts Genetic Bill of Rights; and an interview with James Evans, a recent GeneWatch fixture and co-author of a Science article urging a more realistic view of the practical returns of genetic research. That article ("Deflating the Genomic Bubble," appearing in Vol. 331 of Science in February) draws attention to the problems that arise from inflated expectations of genomics.
Try GeneWatch for free online now at www.councilforresponsiblegenetics.org.
It is hard to keep up with the rush of information and opinion coming out as the result of the rapid growth in genetic research and technology today. Even without our fully realizing it, genetic technology is entering almost every area of our lives; from the genetically modified foods that we eat, to the biodiversity of our eco-system, from human health and reproductive technologies to the operation of the criminal justice system. The public needs information from a trusted source. For over 25 years GeneWatch, CRG’s award-winning magazine, has filled this critical role. GeneWatch covers a broad spectrum of domestic and international issues, from genetically engineered foods to biological weapons, genetic privacy and discrimination, reproductive technologies, and human cloning. GeneWatch features articles by international experts in the field, interviews of critical figures, profiles of every day individuals impacted by developments in biotechnology and reviews of books and movies.
GeneWatch is available by subscription for delivery or for free online. Please visit the CRG website for more information at www.councilforresponsiblegenetics.org