European Society of Human Genetics takes strong position on DTC genetic testing

by jeeg 4. September 2010 00:02

The European Society of Human Genetics has called for thorough regulation of direct-to-consumer genetic testing services in a recently released statement in the European Journal for Human Genetics. 

The statement covers all aspects of direct-to-consumer genetic testing services including:

  • the marketing of tests
  • information for consumers
  • counselling and support
  • consent and data protection
  • the laboratory analysis of biological samples and
  • the levels of support that should accompany the genetic test results

In the statement, ESHG states that while consumers are "entitled to health information and genetic information about themselves...this right to know must be exercised with due respect for the need to protect the same individuals from inappropriate genetic information and testing."



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