CRG Pens Chapter on Genetic Discrimination for New Edition of Bioethics Encyclopedia

by jeeg 25. June 2014 21:35


With its initial publication in 1978, Bioethics became the first encyclopedia reference to focus solely on a then burgeoning field, in effect helping to define the discipline. Both the first and second (1995) editions won the Dartmouth Medal, and the set remains the standard reference on bioethics for teachers, students, and those in related fields of health care, philosophy, environmentalism, law, and religious studies. The fourth edition offers hundreds of revisions or addenda to entries from previous editions as well as over 100 new or rewritten entries on topics such as key cases in bioethics, the human biome, genetically modified foods, emergency preparedness and response, social justice, sustainability, chemical warfare and torture, among many others. Revised articles will explain the events as well as legislation changes of the past decade. The work is also being expanded to include views of nations and cultures other than the United States on such issues as abortion, medical triage, social responsibility, access to health care, stem cell research, etc.

In a new chapter on genetic discrimination by the Council for Responsible Genetics, we explore how the term has evolved to become even more intertwined with both complex privacy concerns over access to genetic information and broader concepts regarding the “misuse” of genetic information, including lack of consent and property rights.

It notes that the primary shortcoming of current policy responses to genetic discrimination concerns is that they fail to create a comprehensive ethical framework for the use of genetic information, which is why such policy responses have failed to stem public anxiety over how genetic information might be abused. The sheer amount of genetic data being generated today, and its commercialization, continues to raise serious medical privacy concerns that have yet to be addressed by policy. As genetics continues to dominate biological research, fears over the collection of genetic information and subsequent misuse of it are likely to continue.

The encyclopedia of Bioethics, 4th edition is avilable at   Amazon and most book outlets.


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