Indiana storing blood & DNA of 2 million children without parents' consent

by jeeg 12. July 2014 15:14
As word of an Eyewitness News investigation spreads through Holliday Park, parents admit they are surprised."You're kidding, right? I had no idea," said Ramon Moore, playing catch with his 7-year-old son, Xavier."I didn't know that at all," agreed Holly Ruth, holding her 3-month old son, Lin... [More]

Minnesota Parents, State Law Now Requires You to Opt Out of Blood Samples Storage Involving Your Newborns

by jeeg 13. May 2014 21:52
  Minnesota’s governor last week signed a bill to reinstate a practice that allows doctors to take blood samples from newborns and store them indefinitely unless their parents opt out, prompting concern from privacy advocates. All newborns across the country receive screening tests... [More]

Parents and Children Deserve Genetic Privacy

by jeeg 28. April 2014 21:23
  Newborn screening is practiced nationwide to detect rare conditions that may be life-threatening or require medical attention. Shortly after birth, the baby’s heel is pricked and a few drops of blood are placed on a special filter-paper blood spot card, which is sent to the state gov... [More]

New DNA Test Can Predict Childhood Obesity. Has Gene Screening Gone Too Far?

by jeeg 31. March 2014 22:15
Scientific advances promise less-invasive ways to screen for diseases in unborn children. But are we on the road to an age of 'designer babies'? Will your child become obese one day? Finding out may be as easy as testing your youngster's blood. But this type of testing is raising concerns about h... [More]

Should Genetic Profiling Be A Staple Of Newborn Screening?

by jeeg 27. March 2014 23:50
  Recent advances in genetic science have raised the possibility that whole genome-sequencing, or WGS, will soon become a staple of newborn screening programs — a development some say could revolutionize preventive care and personalized medicine. WGS proceeds by “decoding”... [More]

Privacy activists decry bill to restore newborn blood sample storage

by jeeg 27. March 2014 21:04
  The Minnesota Department of Health would regain broad authority to test and store blood samples from newborn babies under legislation that has pitted medical privacy activists against advocates of public health and medical research. The bill, which has passed key committees in the House a... [More]

CRG Testifies Against Rollback of Newborn Privacy Protections

by jeeg 18. March 2014 04:50
March 17, 2014 Chairman John Lesch House Civil Law Committee Minnesota House of Representatives RE: HF 2526 Mr. Chairman and Members of the Committee. Founded in 1983, the Council for Responsible Genetics is the oldest national bioethics organization in the United States. We led successful... [More]

Newborn-screening bill would end genetic privacy

by jeeg 15. March 2014 18:21
In a recent commentary, five hospital executives tried to frighten Minnesotans into thinking that if a proposed bill isn’t passed in the Legislature, their babies’ lives will be in danger. The truth is that Senate File 2047 and House File 2526 would not change newborn screening. Rathe... [More]

The Path to Reading a Newborn’s DNA Map

by jeeg 11. February 2014 01:40
What if laboratories could run comprehensive DNA tests on infants at birth, spotting important variations in their genomes that might indicate future medical problems? Should parents be told of each variation, even if any risk is still unclear? Would they even want to know? New parents needn&rsqu... [More]

Dennis Lo: 'Should parents be told about a disease their child might get?'

by jeeg 7. September 2013 01:26
Yuk Ming Dennis Lo recalls the reaction when in 1997 he and colleagues published the unusual news that fragments of an unborn baby's DNA circulate freely in its mother bloodstream in significant quantities. First, he was surprised by the ready acceptance of a discovery he likens to finding your ... [More]
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