A new research project is aiming to determine ways that newborn DNA sequencing can be done most responsibly and effectively for the benefit of babies and their families. The project is led by Robert C. Green, a physician-scientist at Brigham and Women's Hospital and Harvard Medical School, Director ... [More]

Before they are even a week old, ninety-eight percent of the 4.3 million babies born annually in the United States have a small sample of blood taken from their heels. These newborn bloodspots (NBS) are then screened by state agencies for a variety of inherited conditions and may later be stored in ... [More]

The National Institutes of Health is seeking proposals for research projects on the implications of information obtained from sequencing the genome to identify diseases in newborns. The intent of funding such projects is to further the understanding of disorders that appear during the newborn pe... [More]

When Megan and Ricky Gonzales' girls were born in September 2010, the San Mateo couple had no reason to suspect anything was wrong. Megan Gonzales had a normal pregnancy and delivered seemingly healthy identical twins at 38 weeks.   But that changed quickly. Sophia and Charlotte Gonzales ... [More]

A state health program that takes blood samples from Minnesota newborns to screen for more than 50 diseases and disorders can continue despite a legal challenge on genetic privacy grounds, the Minnesota Supreme Court ruled today. But in a ruling that reverses a lower court decision, the ... [More]

A federal class action lawsuit filed today in San Antonio claims the state “deceptively and unlawfully sold, traded, bartered, and distributed blood samples” from newborns in exchange for fees, lab equipment and other purposes. The suit was filed against the Texas Department of St... [More]