PEOPLE tested for predisposition to a genetic disease will no longer have a say in whether their results are given to their close relatives, under proposed changes to NSW laws. The NSW Health Minister, Jillian Skinner, has introduced legislation to allow doctors to inform a patient's blood relative... [More]

Camilla Grondahl asked genetics researcher Gholson Lyon a simple, heartbreaking question: Was she carrying a lethal gene that might kill her unborn baby?   Grondahl, 29, didn’t want to terminate her pregnancy, which began in 2010. She just wanted to know what the scientist knew. ... [More]

Victor Hand, a semi-retired railway manager in Maine, grew so alarmed when he learned that his state was building a database to store all residents' medical files that he rushed to the hospital to try to opt out.   "I sure don't want my information in that thing," Hand said. "I just don... [More]