It's Legal For Some Insurers To Discriminate Based On Genes

by jeeg 22. January 2013 02:52
Getting the results of a genetic test can be a bit like opening Pandora's box. You might learn something useful or interesting, or you might learn that you're likely to develop an incurable disease later on in life.   There's a federal law that's supposed to protect people from having t... [More]

Can You Be Fired for Your Genes?

by jeeg 22. February 2012 00:16
In 2010, Pamela Fink, an employee of a Connecticut energy company, made a new kind of discrimination claim: she charged that she had been fired because she carries genes that predispose her to cancer. Fink quickly became the public face for the cutting edge of civil rights: genetic discriminat... [More]

EEOC proposes records rule on Genetic Information Nondiscrimination Act

by jeeg 14. June 2011 01:13
The Equal Employment Opportunity Commission has issued a proposed rule under which employers would be required to maintain all relevant employment and personnel records until any charge filed under the Genetic Information Nondiscrimination Act is resolved. The 2008 law prohibits employment discri... [More]

Genetic tests moratorium for UK insurance renewed again

by jeeg 6. May 2011 23:45
The Association of British Insurers (ABI) has announced another extension of an existing moratorium on the use of genetic test results for insurance purposes.  First established in 2001, the agreement between the ABI with the UK Department of Health means that individuals are n... [More]

Americans’ Concern about the Privacy of Their Genetic Information Reaches New High

by jeeg 11. January 2011 22:01
A report just released by Cogent Research, in partnership with CAHG, reveals that Americans are more concerned than ever about the privacy of their genetic information. Furthermore, this concern is increasingly inhibiting the likelihood that they will consider having a molecular diagnostic tes... [More]

EEOC Issues Strong Final Rule Implementing GINA

by jeeg 9. November 2010 19:26
The Council for Responsible Genetics, a public interest organization, is hailing the Final Rule implementing the Genetic Information Nondiscrimination Act (GINA) released today by the Equal Employment Opportunity Commission (EEOC).      In its Final Rule, the EEOC lays out in ... [More]

In Memoriam: Paul Miller

by jeeg 20. October 2010 18:23
It is with great sadness that I announce that Paul Miller passed away today in Seattle after a long fight with Cancer.  Many of you know Paul as a tremendous advocate for disability rights who served two Presidents and was one of the longest serving commissioners of the EEOC.  He was... [More]

In Memoriam: Dennis Pollock

by jeeg 5. October 2010 19:03
It is with great sadness that I announce that Dennis Pollock passed away yesterday in Dallas, TX.   He was a tireless champion for the Alpha-1 ( a recessive genetic disorder with emphysema like symptoms) community and a strong advocate for the Genetic Informa... [More]

Woman Alleges Firing Based on Genetic Test Results

by jeeg 6. May 2010 21:29
A Connecticut woman claims she was fired despite years of glowing reports by her employer after she told them she had tested positive for the breast cancer gene and would undergo a double mastecomy as a preventative measure. "I was a great employee and I did really great work," said Pamela Fi... [More]
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