Arrivederci, GINA

by jeeg 5. February 2013 00:36
Yaniv Erlich, Ph.D., and his research team at the Whitehead Institute hoped to start a conversation when they published their study in Science showing that all they needed to identify nearly 50 individuals who had submitted personal genetic material for genomic studies was just a computer, an ... [More]

Colman Chadam, California Boy Ordered To Transfer Schools For Carrying Cystic Fibrosis Gene, Goes Back To Class

by jeeg 8. November 2012 23:59
Colman Chadam has been allowed to return to his middle school after officials ordered him to transfer out because of his genetic makeup. The 11-year-old California boy was told last month that he had to transfer from Jordan Middle School in Palo Alto to another one miles away -- because he carries ... [More]

Boy in school flap over cystic fibrosis

by jeeg 20. October 2012 00:11
By all accounts, Colman Chadam is a healthy, active 11-year-old boy who fit right in at Palo Alto's Jordan Middle School as a new kid in town. Except now, school officials believe his genetic makeup means he is a health risk to some of its other students and ordered that he be moved to anot... [More]

California Genetic Privacy Bill Moves Forward – Padilla’s SB 1267 to Protect a Person’s DNA

by jeeg 25. April 2012 22:42
California’s Senate Judiciary Committee today passed Senate Bill 1267, authored by Senator Alex Padilla (D-Pacoima). The bill would establish the California Genetic Information Privacy Act. The measure now goes to the Senate Appropriations Committee for consideration. Presently, there are no ... [More]

Can You Be Fired for Your Genes?

by jeeg 22. February 2012 00:16
In 2010, Pamela Fink, an employee of a Connecticut energy company, made a new kind of discrimination claim: she charged that she had been fired because she carries genes that predispose her to cancer. Fink quickly became the public face for the cutting edge of civil rights: genetic discriminat... [More]

Health insurance and ‘genetic discrimination’ in Canada: Are rules needed?

by jeeg 4. January 2012 21:22
Medical advances mean we can now test for some disease markers - but experts warn that the knowledge could allow insurers to deny coverage. Brynne Stainsby grew up knowing she had a good chance of being diagnosed with Huntington's disease one day. Her father has the gene that causes the degen... [More]

EEOC proposes records rule on Genetic Information Nondiscrimination Act

by jeeg 14. June 2011 01:13
The Equal Employment Opportunity Commission has issued a proposed rule under which employers would be required to maintain all relevant employment and personnel records until any charge filed under the Genetic Information Nondiscrimination Act is resolved. The 2008 law prohibits employment discri... [More]

Genetic tests moratorium for UK insurance renewed again

by jeeg 6. May 2011 23:45
The Association of British Insurers (ABI) has announced another extension of an existing moratorium on the use of genetic test results for insurance purposes.  First established in 2001, the agreement between the ABI with the UK Department of Health means that individuals are n... [More]


by jeeg 1. March 2011 21:07
VERMONT JOINS CALIFORNIA AND MASSACHUSETTS ADVANCING GENETIC PRIVACY EFFORTS   Vermont has become the third state in 2011 to introduce genetic privacy legislation- following on the heels of legislative action in first Massachusetts and then California. Each of these individual measures ... [More]

Genetic Discrimination Bill introduced in CA

by jeeg 19. February 2011 01:09
Senator Alex Padilla (D-Pacoima) today announced the introduction of Senate Bill 559 which would prohibit discrimination based on genetic information in California.    “Discrimination on the basis of genetic information is no less offensive than discrimination based on race,... [More]
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