Newborn screening collides with privacy fears

by jeeg 16. May 2015 00:59
  The wrinkled heel of nearly every baby in the United States is pricked at birth, and a few drops of blood are dabbed on filter paper and shipped off for analysis. Started in the 1960s, this newborn screening program tests for more than 30 rare and serious diseases that are treatable if cau... [More]

Mining Your Genetic Data for Profit: The Dark Side of Biobanking

by jeeg 30. July 2014 22:55
  Most people are now familiar with big data and how it’s used to target advertising or suggest love matches based on the data we drop as we move through life in the digital age. In exchange for tech freebies, data space in the cloud, or that new dating app, we do a quick cost-benef... [More]

Who’s Keeping Your Data Safe in DNA Banks?

by jeeg 26. July 2014 01:45
  Thinner than average, with serious, shadowed eyes, Kevin Anderson, 36, has worked as a filmmaker for over 10 years. He’s traveled throughout Europe and the Americas producing web and sports videos, news packages and documentary shorts. In his infancy, he was diagnosed with a rare gen... [More]

Your genetic make up to be stored, without consent, for profit

by jeeg 30. April 2013 20:41
    Dr Helen Wallace, director of GeneWatch UK, warned at a MedConfidential event in London that, beyond electronically storing patient records, the next step for the UK is linking these records with DNA and genetic information on an all-in-one database. It is already public policy,... [More]

China establishes national gene bank in Shenzhen

by jeeg 20. June 2011 23:44
China established its first national gene bank on Friday in south China's city of Shenzhen with the support of the Beijing Genomics Institute (BGI), officials said. With the establishment of the National Gene Bank in Shenzhen, China will be able to better protect, research and utilize its pre... [More]

Most States Unclear About Storage, Use Of Babies' Blood Samples

by jeeg 28. March 2011 23:22
State laws and policies governing the storage and use of surplus blood samples taken from newborns as part of the routine health screening process range from explicit to non-existent, leaving many parents ill-informed about how their babies' left over blood might be used, according to a team led b... [More]
Log in