CRG board member Robert Green in the news-The US has laws against genetic discrimination, but people still fear it

by jeeg 29. January 2015 21:38
Genetic discrimination hasn’t yet become a problem in the US. Since the Genetic Information Nondiscrmination Act (GINA) was signed into law in 2008, very few GINA-related charges have been made. That doesn’t mean that Americans aren’t worried that this sort of discrimination migh... [More]

Privacy is Dead, Invasive Technology is Here to Stay

by jeeg 22. January 2015 20:39
  Imagine a world where mosquito-sized robots fly around stealing samples of your DNA. Or where a department store knows from your buying habits that you're pregnant even before your family does. That is the terrifying dystopian world portrayed by a group of Harvard professors at the World ... [More]

Every Patient a Subject

by jeeg 30. December 2014 21:42
  Personalized medicine, the hoped-for use of the information in our genes to inform our medical care, may end up helping people live longer, healthier lives. Or it may not—the jury is still out. But one thing is certain: As our unique genomic data enter our medical records, researcher... [More]

Google Wants Your DNA: Are You Willing to be a Project in the Cloud?

by jeeg 16. December 2014 20:48
  For the past 18 months, Google has quietly been approaching hospitals and universities to acquire genome data in an effort to roll out a cloud computing service for DNA, according to Technology Review. Google Genomics is the search giant’s first product for the DNA age, providing an... [More]

Taking your Genome to the Bank

by jeeg 16. December 2014 20:46
  What’s more valuable than your money, equally vulnerable, and unique to you? Answer: Your genome. And just like your money, your genome should be stored securely as possible and those institutions that store your genome should be regulated on how they store it, use it, and potentiall... [More]

U.S. House unanimously approves newborn screening bill with CRG backed privacy and consent provisions

by jeeg 11. December 2014 18:55
National newborn screening legislation is headed to President Barack Obama's desk for signature after unanimously passing the U.S. House of Representatives on Wednesday. The legislation includes new timeliness and tracking measures aimed at eliminating delays in newborn screening so babies with d... [More]

CRG Victory! Privacy and consent provisions added to Senate passed newborn screening bill

by jeeg 9. December 2014 18:40
  December 9, 2014 The U.S. Senate has passed H.R. 1281, the Newborn Screening Saves Lives Reauthorization Act, after adopting significant privacy and consent protections championed by the Council for Responsible Genetics.   Every US state conducts  a newborn screening test ... [More]

Pharma and Biotech Firms Hacked

by jeeg 2. December 2014 19:38
  For more than a year, a group of cybercriminals has been pilfering email correspondence from more than 100 organizations — most of them publicly traded health care or pharmaceutical companies — apparently in pursuit of information significant enough to affect global financial m... [More]

Privacy Issues Stall Newborn Screening Bill

by jeeg 1. December 2014 21:55
  A bill that would support newborn screening nationwide has stalled in Congress because some Republican senators have privacy concerns about genetic research funded by the legislation. The senators won’t comment individually, but the Senate Steering Committee has indicated it wants a... [More]

Preparing for biometrics and drones in the ‘post-privacy’ era

by jeeg 25. November 2014 23:16
    Privacy is generally understood as a freedom from unauthorized intrusions. The development of the legal protection of our privacy rights was historically tied to traditional concepts of home, curtilage or property. As frequently articulated, our privacy rights were connected to a &... [More]
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