The right to genetic ignorance

by jeeg 7. September 2013 01:34
People should be free to choose whether to be informed about risk factors in their genomes, or those of their children THE age of genomic medicine is dawning. Whole-genome sequencing is starting to transform the diagnosis of rare inherited diseases, and within a few decades it could be a routine part of medical care.  But an ethical row has broken out on this new frontier. In June, the American College of Medical Genetics and Genomics published guidelines arguing that people having t... [More]

Criminals will be forced to give DNA sample under new legislation in Ireland

by jeeg 7. September 2013 01:30
Criminals convicted of serious offences will be required to submit a sample of DNA which will be retained on a centralised database to aid the Garda in solving future crimes, under new legislation. The new Criminal Justice (Forensic Evidence and DNA Database) Bill is set to be published by Minister for Justice Alan Shatter next Tuesday after it was approved at yesterday’s Cabinet meeting. The move follows repeated broken promises by successive governments on the creation of a DNA da... [More]

Dennis Lo: 'Should parents be told about a disease their child might get?'

by jeeg 7. September 2013 01:26
Yuk Ming Dennis Lo recalls the reaction when in 1997 he and colleagues published the unusual news that fragments of an unborn baby's DNA circulate freely in its mother bloodstream in significant quantities. First, he was surprised by the ready acceptance of a discovery he likens to finding your car's engine somewhere other than under the bonnet, since conventional wisdom held that DNA existed only inside cells, not outside like this. Then he was astonished that no one saw the full implicatio... [More]

Scientists to sequence genomes of hundreds of newborns

by jeeg 7. September 2013 01:23
Hundreds of US babies will be pioneers in genomic medicine through a US$25-million programme  to sequence their genomes soon after they are born. Backers of the Genomic Sequencing and Newborn Screening Disorders research programme, unveiled today, say that it will test how useful and ethically sound it is for parents to know about their child’s comprehensive genetic makeup at birth and through childhood. The programme will not replace the screening tests that most states requi... [More]

GMOs in Our Food: Do We Have a Right to Know?

by jeeg 7. September 2013 01:17
If you’re anything like us, you’re probably enjoying a snack while checking your email and catching up on your blogs. If you’re eating a conventionally produced snack – that is, one that is not Certified Organic or Non-GMO Verified – chances are it could be full of GMOs. Check your packaging. Did you see the label informing you of this fact? Most likely you didn’t because companies are not required to tell you whether or not GMOs are in your foods. And y... [More]

Genetic Testing Results In Discrimination For Life Insurance in Australia

by jeeg 3. September 2013 21:45
A case study discusses an example of life insurance discrimination due to genetic test results for cancer predisposition. James (pseudonym), in his early 20s, was denied full life insurance coverage because he revealed that he had discussed genetic testing with a genetic counselor. He was later tested and found to carry a mutation in the MSH6 gene; after disclosing this, he was denied cover for cancer by two other life insurance companies. He then filed a complaint with the Australian Hu... [More]
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