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STAFF
 

 

Jeremy Gruber, JD, President and Executive Director: Jeremy joined CRG in March 2009.  Previously he served as the legal director of the National Workrights Institute, a human rights organization dedicated to the rights of American workers. Prior to that he served as the field director for the ACLU’s National Taskforce on Civil Liberties in the Workplace.


Jeremy has worked for over a decade on genetic non-discrimination legislation at the state and Federal level. He helped author and pass numerous state laws on genetic non-discrimination. Jeremy is a founder and executive committee member of the Coalition for Genetic Fairness, a group of 500 organizations that advocated for genetic non-discrimination legislation on Capitol Hill and played a major role in the recently passed Genetic Information Non-Discrimination Act (GINA) by Congress. He worked closely with members of Congress and staff on GINA language as well as strategy and support. He is a prolific writer on privacy issues and is often consulted by state legislatures. He is regularly featured in print, radio and television.  Jeremy holds a Juris Doctor (J.D.) from St. John’s University School of Law and a B.A. in Politics from Brandeis University.

Sam Anderson , Editor of GeneWatch: Sam edits GeneWatch, CRG's bimonthly magazine. He has worked as a journalist and web content editor and is also currently Livestock and Outreach Coordinator at New Entry Sustainable Farming Project in Lowell, Massachusetts. Sam holds an M.A. in Urban and Environmental Policy and Planning at Tufts University and a B.A. in English from Kenyon College.

Sheila Sinclair, Operations and Projects Manager:  Sheila is a marketing and fundraising professional with 20 years experience as a manager and consultant to numerous national international nonprofit organizations and institutions. With a background in public television, philanthropy and media, she has a wide range of experience and relationships.  She has a particular interest in the use of genetic information in ancestry research.

Kathleen Sloan, CRG Program Coordinator:  Kathleen was the organizer of the national conference on the impacts of forensic DNA databanks on racial disparities in the criminal justice system and its associated public forum.  Sloan has over twenty years experience running non-profit organizations, conducting advocacy work in women’s and indigenous peoples’ rights, directing communications and public relations functions for multi-national corporations and non-profits, fundraising, lobbying and public policy development.  Kathleen has represented the National Organization for Women (NOW) at the United Nations as an NGO and conducted trade negotiations and delegation exchanges in Russia, Hungary and Israel.  She holds an M.A. in international relations.


Senior Fellow

Andrew D. Thibedeau, JD, joined CRG as a Fellow in June of 2009.  Andrew graduated cum laude from the Suffolk University Law School in 2008 and was admitted to the Massachusetts bar later that year. In law school he served as editor of the Journal of Trial and Appellate Advocacy and Executive Board member of the Moot Court Honor Board.  Previously, he spent two years as a legal assistant to Thomas M. Sobol, working principally in pharmaceutical class action litigation.  He is a graduate of Vassar College, where he was a double major in history and political science. In years to come, Andrew looks forward to further study and pursuit of a graduate degree in health policy and bioethics.

Fellow

Vani Kilakkathi joined CRG as a Fellow in August of 2012. As a CRG Fellow, she has published a report and article about the bioethical implications of screening, storing and using newborn blood samples and conducted research that was incorporated into CRG's amicus brief to the Supreme Court in the 2013 Maryland v. King case. She is currently a J.D. candidate at Harvard Law School, where she is the Vice President of Management for the Board of Student Advisors. Vani was the External Fundraising Chair for the 2011 Public Interest Auction and has served as a line editor for the Journal of Law and Technology, as well as a board member of the Women's Law Association. Before law school, she was an eighth grade science teacher as a member of Teach For America's Newark corps. Vani graduated magna cum laude with honors from Brown University, where she double-concentrated in Human Biology and Literary Arts. In 2008, she was awarded the Science and Technology Studies Thesis Prize and selected as a finalist for the University Honors Thesis Prize for her paper, Making Sense of Race in Medicine: Genetic Versus Social Explanations for Breast Cancer Disparities. While at Brown, Vani served as a Rose Writing Fellow and was a recipient of a Undergraduate Teaching and Research Award.

 

 

 

 
 
GeneWatch: Current Issue
Volume 27, Number 1: Privacy in the Age of Genomics
 
A college student writes a paper about GMO labeling – and learns much more than she bargained for.
 
Newborn screening saves lives – but should governments be saving newborns' DNA without parental consent?
 
 
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